Reflections and Fevers and Dehydration (oh my)

This staph infection sucks in a bizarre way. It’s relatively healed but of course I need to keep taking antibiotics. I won’t finish the full course, and I never do. My doctors are okay with it at this point given how horrendously they impact my body. I wasn’t able to go get blood work done today because the man delivering my wheelchair had a fever, so he moved my appointment to Wednesday. I need the chair to get to the lab, therefore, no blood work.

In any event, the blood work is for the allergist, and until that is done, antibiotics and I are still not on great terms. Of course, infections and I don’t get along so well either. He had explained that my body may be hypersensitive in general, and any infection, certain drugs, and certain foods and drinks, can all trigger allergic type responses. The idea makes total sense to me, given that I’ve told nurses for years, “I’m allergic to nothing and everything,” to explain random bouts of hives. It just sucks that Tylenol does nothing for any of my pain, and is now the only acceptable pain reliever per the allergies.

Yes, the doctors did okay the discontinuation of antibiotics early, if my symptoms had resolved. No, I’m not lying.

There is a valid reason for this aside from the allergy issue…antibiotics just make me really really sick. I’ve had suspected C. diff on more than one occasion, and after weeks of constipation, I am officially no longer backed up, courtesy of the Keflex. Of course any antibiotic can cause diarrhea. They treated me for C. diff once, without culturing me, and it resolved, but I hadn’t finished those antibiotics either due to an allergic reaction. Why not get tested to see if it’s hanging out in my gut? First off, you have to have diarrhea to have the test done. (You can only provide a liquid sample. No solids at all or the test can’t be done.) Secondly, I don’t want to be put into isolation for-freaking-ever.

I’m not explaining to anyone who ever visits me in the hospital, that I’m in a gown and whatnot room, because I’ve got C. diff just hanging out in my bum. 

Yes, I know it isn’t that dramatic, but please. I have so much going on, I don’t need that added to it. The antibiotics have somehow increased my bowel movements, but decreased my appetite. I think the low grade fever and nausea is probably to blame. As much as I need the wheelchair as soon as possible, I’m also dreading it. There is something about a power chair, that for me, seems so much more dire. I see someone in a manual chair, even if it has some sort of power assist, and I figure they’re okay. I see the power chair, and my mind just goes straight to sickly things. I feel weird that testing showed that as the best option, even though I know with my hyperactive reflexes and ataxia that it makes sense. I guess I’m just insecure.

Now to go and walk the dogs with a fever, the shakes, and dehydration. I did manage to drink some of a cherry slush, and eat some tots to provide my body with some needed salt, but I simply don’t feel like waiting for an elevator and going down 24 floors. This move can’t come soon enough. The idea of being just 2 floors up, and better yet, not being in a city with the rats, cockroaches, and hepatitis A outbreak. The rat realization was new, and while I love them as pets, the ones that live on the streets definitely harbor disease. It’ll be nice removing that element from my daily struggle.

It’s hard explaining to people who think you look like you’re doing well, just how much effort it takes to put on that facade.

Advertisements
Reflections and Fevers and Dehydration (oh my)

I’ve Always Wanted Fuller Lips…But Not Quite Like This

After a few days of stress, and feeling like garbage, I was pleasantly surprised to be feeling pretty good after taking a couple of naps. Everything was going fine, until my lip started to tingle. I was annoyed when the tingly feeling shifted to a burning. Investigation showed some redness, and by then my lip was basically numb. I nonchalantly mentioned that I thought I was getting some oral ulcers, before asking if my lip appeared swollen.

Within five minutes I went from how I usually look, to having a pretty seriously swollen top lip, numbness in both lips, numbness up my nose, and some selling in my cheek. Even my tongue was numb in parts, and my hard palate was almost totally numb.

It has happened before, but I just assumed it was related to the Flagyl I’d been on at the time. Now I have to wonder if there was something else at play. After an extraordinary high dose of Benadryl, things settled down a bit. My lip was (and still is) sore, as are parts of my lower lip, and tongue. I did have some increased swelling again this morning, so I took more Benadryl. My primary care doctor is phoning in an Epi-Pen just in case, and I have an allergist appointment on the 5th of February.

I laughed it off, but the person I was with at the time was slightly less amused. With how quickly the swelling came on, and spread, he had legitimately worried that he’d have to rush me to an ER, or even call an ambulance. I can look at the situation logically, and appreciate his fears. Looking back on it, I’m lucky. The numbness moving down the roof of my mouth, into my gums, and even parts of my face? That’s serious. If it had moved down my throat, and I’d lost the ability to breathe, it could have been deadly.

For years I was told I didn’t have nice lips. (I have perfectly normal lips, just for general information.) When I’ve had instances where my lips tingle or even puff up a little, I just chalk it up to blow flow, and feel grateful. It took this level of severity, to realize the periodic episodes of hives without a cause, and now this, are definitely a sign that my system is not in synch.

My theory is twofold. The first scenario is that my immune system is screaming intruder as though an allergen is present. The result is a flurry of histamine and other responses, leading to hives and/or swelling. The second scenario is that I’m actually having angioedema, and not an allergic type reaction. There have been a lot of cases in which someone has an autoimmune disease along with angioedema or mast cell activation syndrome (MCAS). I don’t think it would be MCAS, as I don’t have (at least not yet) symptoms of anaphylaxis. What I do have, are these episodes where it seems as though the blood vessels in my lips, mouth, and perhaps cheeks, all want to allow the area to expand.

I can’t know, of course, and I doubt doctors will have an easy answer. I will presumably be getting allergy testing done, but with the gastroparesis, I’m not expecting a huge change in my diet. It would be nice to know for sure what I should avoid, and extra nice to know if I am truly allergic to several medications, or if my body was just going rogue because I was ill.

Alas, I can save money on lip injections, but I won’t know for sure which areas will be plump, and I won’t know how long the plumpness will last. (Let’s not forget the lisp, either!)

We joke, and we laugh, because we’re alive.

I’ve Always Wanted Fuller Lips…But Not Quite Like This